Over the weekend I seem to have attracted a few more people checking out this blog. Hello! /\/\/\/\ (me waving at y'all...)
Some of you may be wondering about other things I've written on some blogs in their comments and not written here, well, when I first got out here in blogland, someone told me they thought I was exaggerating about the things that have happened to me, because a lot of it seemed pretty sad. I have had a pretty difficult life, I admit that, but I was a bit taken aback about their accusation, so I became a little bit reticent about telling it all. And to be honest, I'm used to my life. The bits that are sad, are pretty much just a normal part of my life by now, although I'm sure when others hear the details, it's a lot. It is what it is. It's just dribbling out in pieces I guess...
So to catch up the peanut gallery out there, Tuesday is my RAIU test. This stands for Radioactive Iodine Uptake scan, and it's supposed to check out my thyroid condition. Specifically to figure out why I have hyperthyroid symptoms, but my TSH varies all over the map. It's been low to undetectable, then bouncing back perfectly then all over the place.
I think, based on the research I've done, that my thyroid is gone hyper as evidenced by my previous high uptake six months ago, and that possibly I even have toxic multinodular goiter, all easily treatable, if I can just get a Dr. to pay attention. They are all thrown by the sometimes normal TSH. But various drugs I'm taking including HRT, aspirin, allergy meds, sleep drugs, etc. can all alter the results of TSH, free T3, free T4 tests, so they look fine. Dr.Evil was absolutely no help, because creative discussions about pharmaceutical interactions were simply beyond her. My other endocrinologists have tried to convince me that I'd just feel better if I got pregnant, and if you remember, the last one decided that I must be diabetic, or have PCOS, even though that was impossible.
I guess if I stop eating twinkies and relax and have sex it will all be better, right?
Anyway, so back to being my own Doc again...I got my GP to order the RAIU, and another MRI, and we're going from there.
Oh yeah, forgot to mention the story of all my neurological symptoms didn't I? See, two years ago, after years of sleep disturbances I went to a sleep clinic. They diagnosed me with a parasomnia, very mild, but possibly neurological (as opposed to psychological) in origin. I got a CT scan, and an MRI. Both came back showing some slight abnormalities, but not conclusive for anything in particular. So I got another one, with contrast, yadda yadda. They said they saw nothing, but it turned out later, they only looked at arteries and veins, not brain structures related to my parasomnia. (The original reason for which they did the effin' MRI, the buttheads....)
Anyway, the thyroid problem is possibly, remotely, but highly unlikely a TSH-oma; a brain tumour that can cause normal TSH yet high 24-hour uptake on a RAIU scan, and hyperthyroid symptoms, and ovarian failure due to pressure on the pituitary, and make ADD worse, and sleep disturbances, and well, it's totally unlikely, but if I write it here on my blog, then it becomes impossible, RIGHT? RIGHT? Work with me people, okay!!!
So I'll be radioactive, the next 72 hours. The good news is that I get the bathroom to myself, since all the stuff goes out through my urine. The bad news is the environment is going to take a slight hit, whoops!
I apologize to all the fish I'm about to kill. With glow in the dark pee.